Palliative medicine and family doctor – past, present, future

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Prof. Semidotska Zh.D., as. prof. Cherniakova I.A., as. prof. Neffa M.Iu., as. prof. Karmazina I.S. Kharkiv National Medical University, Department of Propedeutics of Internal Medicine № 2 and nursing

Modern concepts about palliative medicine (PM), palliative and hospice care (PHC) are represented in the article. Authors have covered history of PM and PHC, philosophical foundations, principles, objectives and purposes of PM as well as forms, services and levels of PHC. Challenges of life, dying and patient rights for death with dignity are discussed. Attention is paid to ethical aspects of PHC such as: patient’s autonomy, necessity of individual holistic approaches to patient’s needs and making of doctor’s decision. The crucial role of family physician at the field of PM and PHC is pointed out.

Key words: palliative medicine, palliative and hospice care, family physician.

https://dx.doi.org/10.15407/internalmed2017.02.016
Semidotska ZD, Cherniakova IA, Neffa MIu, Karmazina IS. [Palliative medicine and family doctor – past, present, future]. z. vnutr. simejnoi med. 2017;2:16-22. Russian.

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1. Potter VR. Bioetika: most v budushchee. Kyiv: Derzhava; 2002. 216 p. Russian.
2. Inbadas H, Gillies M, Clark D. Scottish Atlas of Palliative Care. University of Glasgow; 2016. 52 p.
PMCid:PMC5026679
3. Sonders S. Pomoshch’ umiraiushchim. Zdorov’ emira. 1982;1:16. Russian.
4. O’Connor M, Aranda S. Palliative Care Nursing: A Guide to Practice. 2nd edition. Boca Raton: CRC Press Taylor & Francis Group; 2003. 388 p.
5. Watson M, Lucas C, Hoy AM et al. Oxford Handbook of Palliative Care. USA: Oxford University Press; 2005. 864 p.
6. Faull C, de Caestecker S, Nicolson A et al. Handbook of Palliative Care 3d ed. Hoboken: Wiley-Blackwell; 2012. 504 p.
https://doi.org/10.1002/9781118426869
7. Stevens E, Jackson S, Milligan S. Palliative Nursing: Across the Spectrum of Care. Hoboken: Wiley-Blackwell; 2009. 352 p.
https://doi.org/10.1002/9781444322705
8. Radbruch L, Payne S. White Paper of standards and norms of hospice and palliative care in Europe: part 2. Europ Journ of Palliative Care. 2010;17(1):22-23.
9. Woitha K, Van Beek K, Ahmed N et al. Validation of quality indicators for organization of palliative care: A modified RAND Delphi study in seven European countries (the Europall project). Palliative Medicine. 2014;28(2):121-129. DOI: 10.1177/0269216313493952.
https://doi.org/10.1177/0269216313493952
10. Boyd K. Palliative Care Pocket Guidelines. –Palliative Care Service, Royal Infirmary of Edinburg, 3d ed. 2010; 72 p.
11. Mohanti BK. Ethics in Palliative Care.Indian Journal of Palliative Care. 2009;15(2):89-92.
https://doi.org/10.4103/0973-1075.58450
PMid:20668583 PMCid:PMC2902121
12. Graham F, David C. WHO Definition of Palliative Care. Medicine. 2008;2(36):89-92.
13. Heide van der A, Onwuteaka-Philipsen BD, Rurup ML et al. End-of-life practice in Nederland under the euthanasia act. The New England Journal of Medicine.2007;356(19):1957-1965. DOI: 10.1056/NEJMsa071143
https://doi.org/10.1056/NEJMsa071143
14. Deklaratsiia otnositel’no evtanazii — prava cheloveka i professional’naia otvetstvennost’ vracha v dokumentakh mezhdunarodnykh organizatsii. Kyiv: Sfera; 1998. 33 p. Russian.
15. Materstvedt LJ, Clark D,Ellershaw J. Eutanasia and physician assisted suicide: a view from EAPC Ethics Task force. Palliative Medicine.2003;17:97-101. DOI:10.1191/0269216303pm673oa
https://doi.org/10.1191/0269216303pm673oa
16. Council of Europe. Recommendation Rec (2003) 24 of the committee of ministers to member states on the organisation of palliative care. in: Adopted by the Committee of Ministers on 12 November 2003 at the 860th Meeting of the Ministers’ Deputies; 2003.
17. Radbruch L, Voltz R. [What is special in specialised palliative care?]. Schmerz. 2008 Feb;22(1):7-8. doi: 10.1007/s00482-008-0628-x. German. PubMed PMID: 18214550.
https://doi.org/10.1007/s00482-008-0628-x
18. Ferrell B, Dahlin C, Welsh S et al. The National Consensus Project Clinical Practice Guidelines for Quality Palliative Care. 3rd ed. 2013. 70 p.
19. Novik AA, Ionova TI, Shevchenko IuL. Rukovodstvo po issledovaniiu kachestva zhizni v meditsine. 2-e izdanie. Moscow: ZAO OLMA Media Grup; 2007. 320 p. Russian.
20. Buckley J. Palliative Care: An Integrated Approach. Hoboken: Wiley-Blackwell; 2008. 350 p.
21. Grinyer A. Palliative and End of life Care for Children and Yong People: Home, Hospice, Hospital. Hoboken: Wiley-Blackwell; 2012.200 p.
https://doi.org/10.1002/9781118702918
22. Danilov AB, Danilov AlB. Upravlenie bol’iu. Biopsikhosotsial’nyi podkhod. Moscow: AMM PRESS; 2012. 568 p. Russian.
23. Heinze KE, Holtz HK, Rushton CH. Strategies for promoting High-Quality Care and personal Resilience in palliative care. AMA Journal of Ethics. 2017;19(6):601-607. DOI: 10.1001/journalofethics.2017.19.6.pfor2-1706.
https://doi.org/10.1001/journalofethics.2017.19.6.pfor2-1706
24. Fishman SM. Recognizing pain management as a human right: A first step. Anesthesia &Analgesia. 2007;105:8-9. DOI: 10.1213/01.ane.0000267526.37663.41.
https://doi.org/10.1213/01.ane.0000267526.37663.41
25. Podobrii VM. Ranniaia palliativnaia pomoshch’ sposobstvuet uvelicheniiu prodolzhitel’nosti zhizni bol’nykh onkologicheskogo profilia. Ukr. med. chasopis. 2010;8:27. Russian.
26. Casaretty DJ, Karlawish JH. Are special ethical guidelines needed for palliative care research? Journal of Pain and Symptom Management. 2000;20(2):130-139. PMID:10989251
https://doi.org/10.1016/S0885-3924(00)00164-0
27. Glare PA, Sinclair CT. Palliative medicine review: prognostication. Journal of Palliative Medicine. 2008;11(1):84-103. doi: 10.1089/jpm.2008.9992.
https://doi.org/10.1089/jpm.2008.9992
28. Gnezdilov AV. Psikhologiia i psikhoterapiia poter’. Posobie po palliativnoi meditsine. St.Petersburg: Rech’; 2002. 112 p. Russian.
29. Sitte Th. Vorsorge und Begleitung fur das Lebensende. Auflage: Springer; 2015. 205 p. Deutsh.
30. Stiernsward J, Gomez-Batiste X, Walsh D. Palliative Medicine. The Global perspective: Closing the know-do gap. Palliative Medicine. Philadelphia: Elsevier; 2008. 2-8 p.
31. Ponkin IV, Ponkina AA. Palliativnaia meditsinskaia pomoshch’: poniatie i pravovye osnovy. Moscow: Glavvrach; 2014. 75 p. Russian.
32. Lissabonskaia deklaratsiia otnositel’no prav patsienta. Sbornik dokumentov. Prava cheloveka i professional’naia otvetstvennost’ vracha v dokumentakh mezhdunarodnykh organizatsii. Kyiv: Sfera; 1998. 22 p. Russian.
33. Venetsianskaia deklaratsiia otnositel’no neizlechimykh zabolevanii. Sbornik dokumentov. Prava cheloveka i professional’naia otvetstvennost’ vracha v dokumentakh mezhdunarodnykh organizatsii. Kyiv:Sfera; 1998. 23 p. Russian.
34. Porokh VI, Katrunov VA. Palliativnaia meditsina i kachestvo zhizni beznadezhno bol’nykh patsientov: meditsinskii i pravovoi aspekty. Vestn. Saratovskoi gosudarstv Akad. 2015;2(103):241-246. Russian.
35. Kiubler-Ross E. O smerti i umiranii. Kyiv: Sofiia; 2001. 320 p. Russian.
36. Gubs’kyj JuG, Hobzej MK. Farmakoterapija v paliatyvnij ta hospisnij medycyni. Klinichni, farmacevtychni ta medyko-pravovi aspekty. Kyiv: Zdorov’ja; 2011. 352 p. Ukrainian.
37. Elsner F, Centeno C, Cetto Get all. Recommendations of the European Association for Palliative Care (EAPC) For the Development of Undergraduate Curricula in Palliative Medicine at European Medical Schools. http://www.eapcnet.eu. ISBN 978-88-902961-9-2.
38. Voronenko JuV, Gubs’kyj JuG, Carenko AV. Pytannja pidgotovky kadriv ta rozvytok naukovyh doslidzhen’ z paliatyvnoi’ medycyny jak peredumova stvorennja suchasnoi’ systemy paliatyvnoi’ ta hospisnoi’ dopomogy v Ukrai’ni. Mizhnarodnyj zhurnal reabilitacija ta paliatyvna medycyna. 2015;2(2):59-66. Ukrainian.
39. Ferris FD, Balfour HM, Bowen K, Farley J, Hardwick M, Lamontagne C, Lundy M, Syme A, West PJ. A model to guide patient and family care: based on nationally accepted principles and norms of practice. Journal of Pain and Symptom Management. 2002;24:106-123. PMID: 12231127.
https://doi.org/10.1016/S0885-3924(02)00468-2
40. Egorova OIu. Osobennosti okazaniia palliativnoi pomoshchi sestrami miloserdiia. Sviato-Dmitrievskoe sestrichestvo; 2011. 69 p. Russian.